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    <loc>https://www.frrs1l.org/home</loc>
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    <lastmod>2026-06-29</lastmod>
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      <image:title>Home</image:title>
      <image:caption>images of Frizzle kids</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/6199b89cf1d89463ad3d4203/bab4a3e9-5dd1-4721-bfa8-6ff257f56442/66873245510__010FD2B9-830C-42D4-BF6D-8494D0D26A05.jpeg</image:loc>
      <image:title>Home</image:title>
      <image:caption>A young girl with blonde hair lying in a hospital bed wearing a mask and pajamas with animal prints, holding a stuffed animal. Medical equipment and a remote control are nearby.</image:caption>
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    <image:image>
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      <image:title>Home</image:title>
      <image:caption>A young boy with glasses smiling and looking away, sitting in a wheelchair with a headrest.</image:caption>
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    <image:image>
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      <image:title>Home</image:title>
      <image:caption>A young boy with a disability sitting in a wheelchair, wearing a red Christmas-themed shirt and green pants. He has a medical headrest supporting his head and appears to be resting or sleeping.</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/6199b89cf1d89463ad3d4203/af06948e-2884-4a2d-984d-c7e444b8fa68/Photo+Dec+07+2025%2C+2+10+40+PM+%282%29.jpg</image:loc>
      <image:title>Home</image:title>
      <image:caption>A young girl with curly dark hair and light skin lying in bed with her mouth open. She is resting her head on a pillow with a star pattern, covered by a green quilt. There is a stuffed animal on her lap. The background shows curtains and a lamp on a bedside table.</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/6199b89cf1d89463ad3d4203/ebf4ef7c-f568-4f37-87f1-1f05609d5aad/Providence+hospitl+with+feeding+tube+and+respiratory+distress.jpg</image:loc>
      <image:title>Home</image:title>
      <image:caption>A young child lying in a hospital bed with a medical mask featuring ladybugs, connected to medical tubes and equipment, with an adult woman taking a selfie next to the bed.</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/6199b89cf1d89463ad3d4203/c41ed0b0-3f85-47d6-ba82-923b65df2486/Photo+Dec+07+2025%2C+2+10+40+PM+%285%29.jpg</image:loc>
      <image:title>Home</image:title>
      <image:caption>A young boy in a wheelchair wearing a Mickey Mouse hat with big black ears, smiling and showing face paint that resembles whiskers, in a room with colorful artwork on the wall.</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/6199b89cf1d89463ad3d4203/67eef327-f5f1-4d6e-a9b7-6b360e5cd346/Photo+Dec+07+2025%2C+2+10+40+PM+%283%29.jpg</image:loc>
      <image:title>Home</image:title>
      <image:caption>A young girl with braided hair, wearing a blue t-shirt with a graphic on it, sitting in a wheelchair, with a big blue bow in her hair and making a playful face.</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/6199b89cf1d89463ad3d4203/c6946304-eb93-4e5f-a278-e1492554fdf3/Photo+Dec+07+2025%2C+2+10+40+PM+%284%29.jpg</image:loc>
      <image:title>Home</image:title>
      <image:caption>A young girl with curly hair lying on a bed with blue sheets, wearing a black T-shirt with green and white text and graphics, and blue jeans. She is looking away from the camera.</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/6199b89cf1d89463ad3d4203/946484e0-8599-4099-9dc3-1ed775e795d1/Photo+Dec+07+2025%2C+2+10+40+PM+%285%29+%281%29.jpg</image:loc>
      <image:title>Home</image:title>
      <image:caption>Young boy lying in a hospital bed with a pacifier in his mouth and a bead necklace nearby, connected to medical equipment.</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/6199b89cf1d89463ad3d4203/1c20aa30-dea9-42f0-8aea-f5cd08ddb89f/Photo+Nov+06+2025%2C+9+16+32+AM.jpg</image:loc>
      <image:title>Home</image:title>
      <image:caption>A young girl with glasses and a yellow bow in her hair lying on her side in a bed, wearing a yellow shirt with a Minnie Mouse print.</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/6199b89cf1d89463ad3d4203/03d977c1-1c5d-40a1-a38b-959f98a23f46/Photo+Dec+07+2025%2C+2+10+40+PM+%286%29.jpg</image:loc>
      <image:title>Home</image:title>
      <image:caption>Young boy with a disability sitting in a specialized wheelchair with a tray and leg braces, holding colorful building blocks, near a window and plain wall.</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/6199b89cf1d89463ad3d4203/e8800b83-bc6e-4276-a89e-56a87748d8ed/Photo+Dec+07+2025%2C+2+10+40+PM+%289%29.jpg</image:loc>
      <image:title>Home</image:title>
      <image:caption>A young girl in a pink dress and white bib sitting in a stroller near a body of water on a wooden dock, with trees and boats in the background.</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/6199b89cf1d89463ad3d4203/a20dc87a-2d58-48ee-98fb-95a4fc1e594c/Photo+Dec+07+2025%2C+2+10+40+PM+%287%29.jpg</image:loc>
      <image:title>Home</image:title>
      <image:caption>Young boy in a wheelchair smiling with missing upper teeth, wearing a green shirt, and holding a white and pink toy dinosaur.</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/6199b89cf1d89463ad3d4203/80665209-9f22-404a-9814-908d640aaa88/Photo+Dec+07+2025%2C+2+10+40+PM+%288%29.jpg</image:loc>
      <image:title>Home</image:title>
      <image:caption>A young girl in a wheelchair wearing reindeer antlers and a striped dress sits in front of a decorated white Christmas tree, covered with blue and gold ornaments, with Christmas lights reflecting on the glass door beside her.</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/6199b89cf1d89463ad3d4203/677c23a0-2081-495b-a0e9-dfd2269ed2a2/Photo+Dec+07+2025%2C+2+10+40+PM+%2810%29.jpg</image:loc>
      <image:title>Home</image:title>
      <image:caption>Young boy with glasses wearing a yellow patterned hat and a light yellow button-up shirt, sitting in a wheelchair indoors.</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/6199b89cf1d89463ad3d4203/69f23fb5-5dfe-4b63-b322-692e359585c3/Photo+Dec+07+2025%2C+2+10+40+PM+%289%29+%281%29.jpg</image:loc>
      <image:title>Home</image:title>
      <image:caption>A young girl in a hospital bed smiling happily with a nasal cannula and medical equipment around her, wrapped in a colorful blanket.</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/6199b89cf1d89463ad3d4203/a65d4b93-cde9-4d7f-94bc-8c6acccb8f06/Photo+Dec+07+2025%2C+2+10+40+PM+%2811%29.jpg</image:loc>
      <image:title>Home</image:title>
      <image:caption>A young boy with glasses sleeping in a wheelchair, wearing a plaid shirt, jeans, white sneakers, and a bib that says 'Grandma's Boy Gramma.'</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/6199b89cf1d89463ad3d4203/5640aa9e-17f4-4608-81d4-957d9033b6fa/Photo+Dec+07+2025%2C+2+10+40+PM.jpg</image:loc>
      <image:title>Home</image:title>
      <image:caption>A young person in a wheelchair wearing a Santa hat and glasses, with a hospital or care facility setting in the background and colorful balloons around</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/6199b89cf1d89463ad3d4203/e6888156-9fe6-40f1-b3c4-7af6e70b3ea5/20241107_153627.jpg</image:loc>
      <image:title>Home</image:title>
      <image:caption>A girl lying in bed with a large stuffed teddy bear beside her, and a doll lying in her arms. The background shows a window with curtains and a view of the outdoors.</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/6199b89cf1d89463ad3d4203/f8d443de-6741-4faa-bac9-27dbf849660b/20210712_064734.jpg</image:loc>
      <image:title>Home</image:title>
      <image:caption>A young boy lying in a hospital bed with his eyes half-open, wearing a blue shirt. A person with a hospital wristband is gently touching or calming him, with their hand above his head. The bed has a metallic rail and a striped bedsheet, and the background shows a wall with pastel-colored panels.</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/6199b89cf1d89463ad3d4203/70402bbb-7856-433a-9253-0cce920751c1/5AFC7BE6-E33D-482A-91C9-2376C31C5248.jpg</image:loc>
      <image:title>Home</image:title>
      <image:caption>A young girl with blonde hair and glasses smiling in a wheelchair, wearing a white shirt and colorful shorts, in a room with a pink balloon on the floor and various objects in the background.</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/6199b89cf1d89463ad3d4203/f91d2cdd-ec98-463f-aac6-55c4e35f41b4/123_1_1.JPEG</image:loc>
      <image:title>Home</image:title>
      <image:caption>A man wearing a red Santa hat, glasses, and a red shirt, smiling while sitting in a chair. A plush elf doll is perched on his shoulder, dressed in a Christmas outfit with a red hat, green suit, and red and white striped leggings.</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/6199b89cf1d89463ad3d4203/6a388707-5b3f-417b-ab58-39a81dc9fbeb/20220323_180648.jpg</image:loc>
      <image:title>Home</image:title>
      <image:caption>A woman with long, curly hair wearing glasses and a striped shirt, appears to be surprised or in awe, lying on a bed with colorful rainbow and polka dot patterned pillows.</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/6199b89cf1d89463ad3d4203/617855c8-90c4-4d48-80a9-570b78f37306/20240503_113539.jpg</image:loc>
      <image:title>Home</image:title>
      <image:caption>A young boy with curly brown hair and light skin sitting in a stroller, wearing a green T-shirt with a yin-yang symbol and a slogan, and a baseball cap with an outdoor adventure patch.</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/6199b89cf1d89463ad3d4203/a98a7187-7d46-4861-b1a0-b5d7e65519f9/20240503_132112.jpg</image:loc>
      <image:title>Home</image:title>
      <image:caption>Woman with long curly dark hair in a wheelchair, wearing a red patterned top, blue bandana, and denim shorts, sitting indoors near a door with sunlight.</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/6199b89cf1d89463ad3d4203/807ef706-d128-461d-8a40-37ca5670ab5e/ddb73441-5c91-4f7f-8fde-96e2ea0d0d1b.JPG</image:loc>
      <image:title>Home</image:title>
      <image:caption>A young boy with brown hair and a beige sweater with a reindeer design lying on a hospital bed with a yellow pillow behind his head.</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/6199b89cf1d89463ad3d4203/94f568b9-bd79-40d2-9798-378aa8c8b106/20240615_130105.jpg</image:loc>
      <image:title>Home</image:title>
      <image:caption>A young woman with dark, curly hair lying on a bed with white and floral bedding, yawning or singing, next to a stuffed white animal with black nose and eyes, in a bright room with a bedside lamp and white curtains.</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/6199b89cf1d89463ad3d4203/4004a044-4b8f-4d7c-bdda-25b1144d5b40/Foto+7-9-21+10+28+34+a.%C2%A0m..jpg</image:loc>
      <image:title>Home</image:title>
      <image:caption>A young boy with a medical tube in his nose sitting in a wheelchair at a hospital or clinic. He is wearing a gray Nike shirt and black shorts, with blue cushioned supports around his head, torso, and legs.</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/6199b89cf1d89463ad3d4203/66cdfb2b-53f1-446e-ba6f-f6de68765dd5/Foto+20.05.23%2C+18+50+12.jpg</image:loc>
      <image:title>Home</image:title>
      <image:caption>A young boy smiling in a stroller outdoors next to vibrant pink rhododendron flowers and green foliage.</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/6199b89cf1d89463ad3d4203/fc8465d3-8d89-4258-8161-c9fe5c22492e/image4.jpeg</image:loc>
      <image:title>Home</image:title>
      <image:caption>Young person with dark hair styled in two buns, sitting in a wheelchair with a black headrest and armrests, wearing a yellow shirt and black pants, with eyes closed and mouth slightly open. In their lap is a black tray with an electronic device. The background features a beige sofa with a Christmas pillow that says 'Merry &amp; Bright,' a holiday garland, and festive elf hats on a wooden railing. The room has wood flooring and a doorway leading to another room.</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/6199b89cf1d89463ad3d4203/bdf07a95-d9bd-4a32-8ad8-5b4f5cf3f1ac/Foto+26.02.24%2C+19+39+44.jpg</image:loc>
      <image:title>Home</image:title>
      <image:caption>Close-up of a young boy smiling, lying on a colorful, striped blanket with vivid pink, purple, green, yellow, and orange stripes.</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/6199b89cf1d89463ad3d4203/b12d77bc-7ea1-43e0-9cd0-44f10adef601/image0.png</image:loc>
      <image:title>Home</image:title>
      <image:caption>Young girl in a wheelchair celebrating her 16th birthday, holding a sign that says "smart, strong, sweet 16." She is smiling with her eyes closed, in a bedroom with medical equipment in the background, colorful curtains, and a table with water bottles and personal items.</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/6199b89cf1d89463ad3d4203/b36a8b8e-ee84-4d8f-ab1a-8590ecdc3391/IMG_0075.JPG</image:loc>
      <image:title>Home</image:title>
      <image:caption>A boy in a green shirt standing next to a boy in a wheelchair wearing a Santa hat, in front of a decorated Christmas tree with lights and ornaments. The boy in the wheelchair has a sad or tired expression, while the boy standing looks slightly smiling. There is a Christmas gift wrapped in snowman themed paper and a Santa decoration on the floor.</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/6199b89cf1d89463ad3d4203/f2dbc0e5-7537-4457-9254-51cdf6758fb8/image3.jpeg</image:loc>
      <image:title>Home</image:title>
      <image:caption>A young girl with curly hair sitting in a wheelchair, smiling at the camera in a living room with a beige couch and patterned pillows.</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/6199b89cf1d89463ad3d4203/379bc836-8564-4ff9-a276-da3e66d69420/Iman.jpg</image:loc>
      <image:title>Home</image:title>
      <image:caption>Child in a ball pit filled with colorful plastic balls, looking up at the camera. The ball pit is in an indoor setting with a red, blue, and beige cushion backing, and items like a backpack and papers are visible on a surface in the background.</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/6199b89cf1d89463ad3d4203/bd4b9d53-3944-4d35-8013-c4bca31926d6/IMG_0023.jpg</image:loc>
      <image:title>Home</image:title>
      <image:caption>A young boy with glasses and brown hair sitting in a purple high chair, smiling and showing teeth, with a bandage on his nose, in an indoor setting.</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/6199b89cf1d89463ad3d4203/266cb754-c60f-4061-8107-b869d304e46b/IMG_0052.jpg</image:loc>
      <image:title>Home</image:title>
      <image:caption>Smiling children celebrating Christmas indoors near a decorated Christmas tree with presents, dressed in patterned pajamas, some with holiday accessories, with a partial view of a woman and festive decorations.</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/6199b89cf1d89463ad3d4203/652986f4-6832-4ae3-85b5-fad9b50167f9/IMG_0076.JPG</image:loc>
      <image:title>Home</image:title>
      <image:caption>A young girl in a wheelchair wearing a red shirt and a necklace with medical tubes is looking up at Christmas decorations, including a reindeer-shaped balloon and a Santa Claus ornament.</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/6199b89cf1d89463ad3d4203/63ff3481-ba3e-4efb-9797-49f6423f2dc5/IMG_0079.JPG</image:loc>
      <image:title>Home</image:title>
      <image:caption>A young boy with glasses sitting in a wheelchair, wearing orange protectors on his arms and legs, and a neck brace. He is inside a house near a door that leads outside, with a backyard visible through the glass door.</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/6199b89cf1d89463ad3d4203/0cc848f9-510b-40e8-b270-4c63f1c6cee8/IMG_0127.JPG</image:loc>
      <image:title>Home</image:title>
      <image:caption>A young boy lying on a bed, wearing novelty sunglasses with the year '2023' on the frames and a 'Happy New Year' headband. The boy is wearing a T-shirt with cartoon characters on it.</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/6199b89cf1d89463ad3d4203/8a95fc6f-134c-406d-bdf4-aa77033010fd/IMG_0082.jpg</image:loc>
      <image:title>Home</image:title>
      <image:caption>A young boy with brown hair and closed eyes lying in a hospital bed, connected to a ventilator, with bandages on his wrist and ankle, with medical tubes attached.</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/6199b89cf1d89463ad3d4203/b761f61d-9fd9-42cb-95da-4f3516bc1f66/IMG_4123.jpeg</image:loc>
      <image:title>Home</image:title>
      <image:caption>A smiling young boy with short dark hair and braces, wearing an orange hoodie, lying on a bed with patterned pillows and blue sheets.</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/6199b89cf1d89463ad3d4203/135eb1a3-77d3-4507-b26a-012afb9e8c82/IMG_0083.jpg</image:loc>
      <image:title>Home</image:title>
      <image:caption>A young boy lying in a hospital bed with medical monitors and equipment around him, a healthcare worker attending to him.</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/6199b89cf1d89463ad3d4203/689b608d-d265-4660-a502-dc15f29b3aad/IMG_6771.jpg</image:loc>
      <image:title>Home</image:title>
      <image:caption>A young man with glasses sitting in a wheelchair in a living room. He has a neck pillow with cartoon characters, and various toys hang on a white frame behind him. The room has a brown sofa, a bar with bottles, a wall decor with rockets and space-themed pictures, and a window with blinds.</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/6199b89cf1d89463ad3d4203/fb141a90-07ed-47f4-9520-acfec8a20b13/IMG_0783.jpg</image:loc>
      <image:title>Home</image:title>
      <image:caption>A woman with long dark hair lying in a hospital bed, connected to medical equipment, smiling.</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/6199b89cf1d89463ad3d4203/ce20c794-9b8c-44bf-9b35-c0b24e6f17cf/IMG_0085.jpg</image:loc>
      <image:title>Home</image:title>
      <image:caption>A young child with glasses lying in a hospital bed, wearing a hospital gown with colorful cartoon characters, covered with white hospital sheets, and wearing a head bandage.</image:caption>
    </image:image>
    <image:image>
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    </image:image>
  </url>
  <url>
    <loc>https://www.frrs1l.org/givinghope</loc>
    <changefreq>daily</changefreq>
    <priority>0.75</priority>
    <lastmod>2025-12-17</lastmod>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/6199b89cf1d89463ad3d4203/5b885055-5513-4644-b5d6-deef00b0be85/IMG_0083.jpg</image:loc>
    </image:image>
  </url>
  <url>
    <loc>https://www.frrs1l.org/donate-assets</loc>
    <changefreq>daily</changefreq>
    <priority>0.75</priority>
    <lastmod>2025-12-17</lastmod>
  </url>
  <url>
    <loc>https://www.frrs1l.org/documentary</loc>
    <changefreq>daily</changefreq>
    <priority>0.75</priority>
    <lastmod>2025-12-17</lastmod>
  </url>
  <url>
    <loc>https://www.frrs1l.org/kerry</loc>
    <changefreq>daily</changefreq>
    <priority>0.75</priority>
    <lastmod>2025-12-17</lastmod>
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      <image:loc>https://images.squarespace-cdn.com/content/v1/6199b89cf1d89463ad3d4203/38c54493-a2e8-4c77-9b23-beeb70a21aea/IMG_5462.JPEG</image:loc>
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      <image:loc>https://images.squarespace-cdn.com/content/v1/6199b89cf1d89463ad3d4203/720a5db8-d293-4fb7-8233-1ef73c235cd4/findinghope-logo-full-color-rgb-271px%4072ppi.png</image:loc>
    </image:image>
  </url>
  <url>
    <loc>https://www.frrs1l.org/videos</loc>
    <changefreq>daily</changefreq>
    <priority>0.75</priority>
    <lastmod>2026-05-04</lastmod>
  </url>
  <url>
    <loc>https://www.frrs1l.org/what-is-frizzle-frrs1l</loc>
    <changefreq>daily</changefreq>
    <priority>0.75</priority>
    <lastmod>2026-02-17</lastmod>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/6199b89cf1d89463ad3d4203/54fdb804-6043-439c-8e90-5c2779c2b69f/frrs1l+research+image.png</image:loc>
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      <image:loc>https://images.squarespace-cdn.com/content/v1/6199b89cf1d89463ad3d4203/57fa5fdf-ea69-4bed-94a1-63456fb75ed1/globe_white_icon.png</image:loc>
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    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/6199b89cf1d89463ad3d4203/dc89c030-c569-4cf7-8f6e-381010ca3fed/disease.png</image:loc>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/6199b89cf1d89463ad3d4203/fc950f92-599d-41f1-b241-9912507af474/Providence+hospitl+with+feeding+tube+and+respiratory+distress.jpg</image:loc>
      <image:title>What is Frizzle (FRRS1L) - Additional Resources</image:title>
      <image:caption>FRRS1L gene disorder presents in children through epilepsy, progressive dyskinesis (abnormal movements), developmental delay, diffuse hypotonia, cortical and cerebellar volume loss, and gradual loss of responsiveness to the environment. For information on various types of seizures please check out the Epilepsy Foundation page on Seizure Types.  For information on movement disorders please see Mayo Clinic movement disorders page.  For information on developmental delays please see the CDC’s page on developmental disabilities.  For information on Hypotonia please see the Boston children’s hospital page on Hypotonia.</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/6199b89cf1d89463ad3d4203/e228026e-721d-4013-843b-c98ce79eb38a/Photo+Nov+26%2C+4+15+10+PM.jpg</image:loc>
      <image:title>What is Frizzle (FRRS1L) - REGISTER your Frizzle Child/Children</image:title>
      <image:caption>By registering your child/children with Finding Hope for FRRS1L, it provides valuable information that will help us better understand and track the global map of the Frizzle (FRRS1L) community; it will inform researchers; and it also allows us to keep you informed through email updates and news on the progress towards clinical trials for gene replacement therapy. Registering your child is completely optional.</image:caption>
    </image:image>
  </url>
  <url>
    <loc>https://www.frrs1l.org/research</loc>
    <changefreq>daily</changefreq>
    <priority>0.75</priority>
    <lastmod>2026-05-13</lastmod>
  </url>
  <url>
    <loc>https://www.frrs1l.org/treatmentdevelopment</loc>
    <changefreq>daily</changefreq>
    <priority>0.75</priority>
    <lastmod>2026-05-06</lastmod>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/6199b89cf1d89463ad3d4203/33559af3-6895-497f-9821-a30a1d6a74a7/treatment+dev+process+graphic.png</image:loc>
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    </image:image>
  </url>
  <url>
    <loc>https://www.frrs1l.org/register-1</loc>
    <changefreq>daily</changefreq>
    <priority>0.75</priority>
    <lastmod>2026-06-29</lastmod>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/6199b89cf1d89463ad3d4203/aaef7692-bf16-4405-8766-653801adbbe8/Register+Frizzle+child_web+banner2.png</image:loc>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/6199b89cf1d89463ad3d4203/e228026e-721d-4013-843b-c98ce79eb38a/Photo+Nov+26%2C+4+15+10+PM.jpg</image:loc>
      <image:title>Patient Registration - REGISTER your Frizzle (FRRS1L) Child</image:title>
      <image:caption>By registering your child/children with Finding Hope for FRRS1L, it provides valuable information that will help us better understand and track the global map of the FRRS1L community; it will inform researchers conducting a natural history study of FRRS1L; and it also allows us to keep you informed through email updates and news on the progress towards developing gene replacement therapy treatment. Registering your child is completely optional.</image:caption>
    </image:image>
  </url>
  <url>
    <loc>https://www.frrs1l.org/how-to-help-1</loc>
    <changefreq>daily</changefreq>
    <priority>0.75</priority>
    <lastmod>2025-12-17</lastmod>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/6199b89cf1d89463ad3d4203/d383abe9-17ac-4e2c-ba4f-95b95fc42f25/give.png</image:loc>
      <image:title>Help Us</image:title>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/6199b89cf1d89463ad3d4203/f57a9451-db0e-4b73-88ad-6dbc828a4a63/share.png</image:loc>
      <image:title>Help Us</image:title>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/6199b89cf1d89463ad3d4203/bb386872-6255-4d29-83da-d93331a7cc89/ambassador.png</image:loc>
      <image:title>Help Us</image:title>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/6199b89cf1d89463ad3d4203/d4eb849d-5728-4444-af1c-4395955edffa/hands.png</image:loc>
      <image:title>Help Us</image:title>
    </image:image>
  </url>
  <url>
    <loc>https://www.frrs1l.org/mission</loc>
    <changefreq>daily</changefreq>
    <priority>0.75</priority>
    <lastmod>2026-05-06</lastmod>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/6199b89cf1d89463ad3d4203/1637473283140-L7CON1NOG0E3TYJCHYSX/Find.png</image:loc>
      <image:title>Mission</image:title>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/6199b89cf1d89463ad3d4203/1637473294725-987XHKFHV61G6L7J4YH3/HOPE.png</image:loc>
      <image:title>Mission</image:title>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/6199b89cf1d89463ad3d4203/1637473305349-GU6U7304017KD62MUAXW/FRRS1L.png</image:loc>
      <image:title>Mission</image:title>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/6199b89cf1d89463ad3d4203/98422f07-a275-4cd9-a685-7978dbfd101d/Templates+%2836%29+%281%29.png</image:loc>
      <image:title>Mission</image:title>
      <image:caption>Frizzle advocacy and fundraising</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/6199b89cf1d89463ad3d4203/a1416dd7-13ab-4457-929e-712be1e93126/Photo+Nov+02+2025%2C+4+23+00+PM.jpg</image:loc>
      <image:title>Mission</image:title>
      <image:caption>A large indoor stage with musical instruments and a screen displaying 'Finding Hope' surrounded by purple balloons. Audience members, including children and adults, are seated and standing, with some walking past in the foreground.</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/6199b89cf1d89463ad3d4203/07f291be-3708-46a8-80d1-bbef269849cf/Photo+Nov+02+2025%2C+4+38+58+PM.jpg</image:loc>
      <image:title>Mission</image:title>
      <image:caption>A woman on stage with a headset microphone, hand on chest, standing behind a music stand, in front of a black background with equipment on stage.</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/6199b89cf1d89463ad3d4203/9fb44ec4-d45d-42a9-b215-56c902541d80/Photo+Nov+02+2025%2C+1+49+18+PM.jpg</image:loc>
      <image:title>Mission</image:title>
      <image:caption>A young boy standing outside holding purple and teal balloons, with a modern building with brick and concrete walls in the background and sunlight casting shadows.</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/6199b89cf1d89463ad3d4203/93297914-0e5b-42cc-b8fb-29189487e5fd/Photo+Nov+02+2025%2C+3+33+40+PM.jpg</image:loc>
      <image:title>Mission</image:title>
      <image:caption>Two children dressed in animal costumes, one as a chicken and the other as a cow, standing outdoors on a sunny day with bare trees and a wooden fence in the background.</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/6199b89cf1d89463ad3d4203/0b91ef9c-9b2d-425a-a128-11700655c51d/Photo+Nov+02+2025%2C+3+35+18+PM.jpg</image:loc>
      <image:title>Mission</image:title>
      <image:caption>A woman and a young girl with a mobility device, sitting on the floor in front of a stage with musical instruments and a large screen displaying a logo, QR code, and photos of children, with purple and blue balloons in front.</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/6199b89cf1d89463ad3d4203/4185734b-69f0-4c90-8e87-4c147171d98c/Photo+Sep+19+2025%2C+5+26+43+PM.jpg</image:loc>
      <image:title>Mission</image:title>
      <image:caption>People celebrating at the finish line of a race, with a large banner reading 'FINISH' and featuring the logo 'SUMMIT SPEECH THERAPY.' Children, adults, and a person in a chicken costume pose happily together, with colorful decorations and balloons around them. Text overlay says 'She did it!!!'.</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/6199b89cf1d89463ad3d4203/bfc048dd-9656-4cf4-9a93-9613a4ff061a/IMG_1692.jpg</image:loc>
      <image:title>Mission</image:title>
      <image:caption>A group of people in a swimming pool participating in a swimming lesson or therapy session. There is a woman holding a small child with a flotation device, a man and a woman are assisting in the water, and another man is in the background. The setting appears to be indoors with pool equipment nearby.</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/6199b89cf1d89463ad3d4203/87b6ef08-3220-4ec1-838a-3efb3eba97d2/Tri+My+Best+-+2025-08870.jpg</image:loc>
      <image:title>Mission</image:title>
      <image:caption>A young girl in a bike trailer, wearing a pink helmet and pink wristbands, resting with her eyes closed after a bike ride, with her hand against the side of the trailer.</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/6199b89cf1d89463ad3d4203/aad9a8ff-f069-4a0a-a2e6-7269599f344e/Tri+My+Best+-+2025-08942.jpg</image:loc>
      <image:title>Mission</image:title>
      <image:caption>Woman smiling while pushing a child in a stroller on a sidewalk in a park, with other people walking and sitting in the background.</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/6199b89cf1d89463ad3d4203/29d83027-a151-49df-96b9-04d6f82ca6c0/Photo+Sep+14+2025%2C+1+27+06+PM.jpg</image:loc>
      <image:title>Mission</image:title>
      <image:caption>A group of children and an adult in a suburban neighborhood. A girl in a wheelchair is resting, while a boy in sports gear is posing with a fist pump. Another girl with a large blond wig and sunglasses is standing beside them, smiling. The adult woman is leaning over the girl in the wheelchair, smiling.</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/6199b89cf1d89463ad3d4203/feac8461-57e4-45ee-9bbc-189542bb015f/Photo+Sep+14+2025%2C+1+39+08+PM.jpg</image:loc>
      <image:title>Mission</image:title>
      <image:caption>Two people, a woman and a young girl, are sitting on the floor in a room that appears to be a classroom or therapy space. The woman is smiling and holding the girl, who looks tired or sleepy. The background shows a window, some toys on shelves, and a wall with photos.</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/6199b89cf1d89463ad3d4203/b305eaee-667b-4f62-8fdc-d18a3a0087e5/Photo+Sep+19+2025%2C+4+12+57+PM.jpg</image:loc>
      <image:title>Mission</image:title>
      <image:caption>Children and an adult dressed in a chicken costume holding signs with messages of encouragement outside a building with large windows and a plaque.</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/6199b89cf1d89463ad3d4203/42315aa5-744a-480d-931b-88e5c72cd528/Photo+Apr+04+2025%2C+11+06+36+AM.jpg</image:loc>
      <image:title>Mission</image:title>
      <image:caption>Group of eight young girls and one young girl in a wheelchair standing in a school hallway, smiling at the camera, with a U.S. flag on the left and hallway bulletin boards on the right.</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/6199b89cf1d89463ad3d4203/9a52aa3b-c995-44cb-a441-a55eb2c2867b/Photo+Feb+24+2025%2C+8+14+40+AM.jpg</image:loc>
      <image:title>Mission</image:title>
      <image:caption>A group of people on stage at an event, holding a large check and speaking into a microphone. The audience is seated in front, and a large screen displays stage text. An American flag and the Seal of the City of Liberty are visible.</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/6199b89cf1d89463ad3d4203/a5ac9a68-19b1-4225-94b4-0e1fe0bf7a25/Photo+Oct+05+2025%2C+11+01+49+AM.jpg</image:loc>
      <image:title>Mission</image:title>
      <image:caption>A young girl with an oxygen tube in her nose is lying in a hospital bed holding hands with a woman on her left. On the right side, a woman in a black shirt is sitting beside her. There is a blonde woman in a floral top sitting beside the girl. The bed has white linens and the background shows medical equipment and outlets on the wall.</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/6199b89cf1d89463ad3d4203/550a895d-d401-48e7-8338-f27de526628f/viviana+family+pic+1.png</image:loc>
      <image:title>Mission</image:title>
      <image:caption>Family playing with bubbles outdoors in a garden with trees and bushes.</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/6199b89cf1d89463ad3d4203/39eacf1a-1a24-40b2-8236-adf6c38af251/viviana+family+pic+2.png</image:loc>
      <image:title>Mission</image:title>
      <image:caption>A family sitting on the floor playing with colorful drums.</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/6199b89cf1d89463ad3d4203/7af956f5-383f-4e0e-b936-a0a740599bca/Photo+Jan+02+2026%2C+7+18+58+PM.jpg</image:loc>
      <image:title>Mission</image:title>
      <image:caption>Two images in a magazine layout. The left shows children using eye-gaze communication devices and playing on a tablet. The right features a woman in a hospital room holding a young girl with a medical IV, with medical equipment in the background.</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/6199b89cf1d89463ad3d4203/d48e141d-2372-401b-9138-c01b6a6aeccf/Photo+Jan+02+2026%2C+7+19+06+PM.jpg</image:loc>
      <image:title>Mission</image:title>
      <image:caption>A magazine spread with text on the left page and a photo on the right. The photo shows a man and a woman standing outdoors, smiling, with three children, one of whom is in a pink wheelchair, during daytime.</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/6199b89cf1d89463ad3d4203/d8a64829-7881-4660-b227-3bea0b92db07/Photo+Jan+11+2026%2C+1+47+38+PM.jpg</image:loc>
      <image:title>Mission</image:title>
      <image:caption>A young girl with curly hair wearing glasses, a black headband, and a white shirt, smiling and looking at the camera in a classroom or indoor setting.</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/6199b89cf1d89463ad3d4203/2490b690-3d27-438e-8b90-52d2e696cd9c/1.png</image:loc>
      <image:title>Mission</image:title>
      <image:caption>Information graphic about gene replacement therapy for frizzle disease (FRRS1L) with a light bulb icon and the text "Did you know? Treatment for frizzle (FRRS1L) disease will be gene replacement therapy".</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/6199b89cf1d89463ad3d4203/a8b729e6-a2f5-4500-b00d-f3f8e223b7bb/2.png</image:loc>
      <image:title>Mission</image:title>
      <image:caption>A graphic with a light bulb icon, the text "Did You Know?", and information about gene replacement therapy being a one-time dose for patients, along with a logo and the phrase "Finding Hope" in the top right corner.</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/6199b89cf1d89463ad3d4203/50eb6086-e717-4bd5-828a-0e070e61ad2e/3.png</image:loc>
      <image:title>Mission</image:title>
      <image:caption>A promotional graphic for Finding Hope FRRS1L featuring a DNA strand inside a heart symbol, with text encouraging viewers to learn more about gene therapy on the website www.frs1l.org/videos.</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/6199b89cf1d89463ad3d4203/1da70a81-bb4b-437d-8477-3dadf8706439/1.png</image:loc>
      <image:title>Mission</image:title>
      <image:caption>Celebration announcement for a fundraising event, showing a blue and gray background with megaphones, text indicating $715,000 raised in November and December 2025, and the Finding Hope FRRS1L logo.</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/6199b89cf1d89463ad3d4203/e05416ff-38a2-46af-bd5d-08e4ce131534/2.png</image:loc>
      <image:title>Mission</image:title>
      <image:caption>Graphic with two green and white megaphones, a blue and white heart with a DNA strand, and text about finding hope through treatment and support for Frizzle disease, with a website link for more information.</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/6199b89cf1d89463ad3d4203/344e9d1e-d49c-47c9-90ed-7a0d040d05cb/3.png</image:loc>
      <image:title>Mission</image:title>
      <image:caption>A graphic featuring two green and white megaphones, with a blue message box that reads: 'COMMITMENT. Our donors show they are committed to our cause! They care about Frizzle treatment getting developed by September this year!' The logo of a stylized heart with a DNA strand and the text 'FINDING HOPE FRRS1L' is at the bottom right, with a link to www.FRRS1L.org at the bottom left.</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/6199b89cf1d89463ad3d4203/9f37d466-e5af-48a3-9737-dae177a943a9/4.png</image:loc>
      <image:title>Mission</image:title>
      <image:caption>A thank you message about funds raised for Frizzle gene therapy drug manufacturing, with two green and white megaphones on each side, and the Finding Hope FRRS1L logo at the bottom right corner.</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/6199b89cf1d89463ad3d4203/141d0500-800d-4b34-96c8-a82af8a937ed/5.png</image:loc>
      <image:title>Mission</image:title>
      <image:caption>Thank you message from Finding Hope FRRS1L featuring two green and white megaphones, a blue speech bubble with text, and a logo with a heart, DNA strand, and the words "Finding Hope FRRS1L."</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/6199b89cf1d89463ad3d4203/4c06945a-f2fa-40ef-b795-898e9529765b/1.png</image:loc>
      <image:title>Mission</image:title>
      <image:caption>A graphic of a zebra with blue, green, and teal stripes. Text states "February is Rare Disease Month! Celebrate with us! Like and Share."</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/6199b89cf1d89463ad3d4203/f692feb6-dd63-4e7e-9c72-53a7d20d965f/2.png</image:loc>
      <image:title>Mission</image:title>
      <image:caption>A graphic promoting Finding Hope for Frizzle, a project with a heart and DNA strand logo, and includes the website www.FRS1L.org.</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/6199b89cf1d89463ad3d4203/a83ab86f-24a9-47e5-9cd9-4765e8239fa3/Photo+Jan+03+2026%2C+10+14+05+AM.jpg</image:loc>
      <image:title>Mission</image:title>
      <image:caption>Smiling woman and young boy taking a selfie in a living room with a sliding door leading outside to a backyard with a playhouse and lawn. The woman has dark hair and is wearing a blue and white striped shirt. The boy is lying on a yellow pillow shaped like a bee, with a white shirt and short brown hair.</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/6199b89cf1d89463ad3d4203/d5b6e767-4761-47f9-afca-65e6a6cb3bdb/Photo+Jan+08+2026%2C+3+12+02+PM+%285%29+%281%29.png</image:loc>
      <image:title>Mission</image:title>
      <image:caption>A newspaper front page with a photo of three children, one reading a book, another in a doctor’s chair, and one wearing a cowboy hat, in a room with photos on the wall, a monitor, and a hanging IV drip. There is a red banner with white text that says 'BREAKING NEWS' and a message thanking the Denver Post for sharing a story about FRRS1 (Frizzle) disease.</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/6199b89cf1d89463ad3d4203/0682a5e9-f48b-41f0-89a0-108df7c5d2d6/videopic4.png</image:loc>
      <image:title>Mission</image:title>
      <image:caption>Father giving an oxygen mask to a young boy lying in bed at home</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/6199b89cf1d89463ad3d4203/24bfa484-ae6a-4c65-b1d7-2cfc6492c104/videopic6.png</image:loc>
      <image:title>Mission</image:title>
      <image:caption>A woman comforts a man who is crying and covering his face with his hand while sitting on a sofa in a living room.</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/6199b89cf1d89463ad3d4203/ad323041-7e5a-4c9f-8e00-f8c1c3495824/videopic7.png</image:loc>
      <image:title>Mission</image:title>
      <image:caption>A young boy lying in a hospital bed, surrounded by toys and medical equipment, with a head halo device attached to his head.</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/6199b89cf1d89463ad3d4203/ed91369a-9c5b-4f10-90a8-9d53d98bd54a/videopic8.png</image:loc>
      <image:title>Mission</image:title>
      <image:caption>Young girl lying in bed with a long braid, surrounded by pink stuffed animals, decorative pillows, and plush toys in her bedroom.</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/6199b89cf1d89463ad3d4203/e1e8e794-a567-4aa1-be27-c19c6f24f989/videopic9.png</image:loc>
      <image:title>Mission</image:title>
      <image:caption>Two scientists in lab coats working and talking in a laboratory with shelves of lab supplies and equipment.</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/6199b89cf1d89463ad3d4203/2bd54a49-2dc0-4bff-aea0-fdcb95875bc1/videopic13.png</image:loc>
      <image:title>Mission</image:title>
      <image:caption>A scientist using a microscope in a laboratory with shelves of supplies.</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/6199b89cf1d89463ad3d4203/ccead702-08a4-4e60-a6f1-eee1a7690b18/videopic15.png</image:loc>
      <image:title>Mission</image:title>
      <image:caption>Two women seated at a conference table watching a presentation on a large wall-mounted screen showing a mouse.</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/6199b89cf1d89463ad3d4203/eeed7b3b-064c-4688-8d86-0deedbb8d98c/videopic18.png</image:loc>
      <image:title>Mission</image:title>
      <image:caption>A girl with glasses in a wheelchair talking with her family, including a woman, a man, and two boys, in a living room.</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/6199b89cf1d89463ad3d4203/d31543a4-e880-4fc4-b313-49e31bee1853/videopic19.png</image:loc>
      <image:title>Mission</image:title>
      <image:caption>A family scene with a father and mother smiling and holding hands with their young child in a bright living room.</image:caption>
    </image:image>
  </url>
  <url>
    <loc>https://www.frrs1l.org/info-for-frizzle-families</loc>
    <changefreq>daily</changefreq>
    <priority>0.75</priority>
    <lastmod>2026-08-27</lastmod>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/6199b89cf1d89463ad3d4203/0376d578-ade5-4d35-8deb-eb1ce0307e76/IMG_0079.jpg</image:loc>
    </image:image>
  </url>
  <url>
    <loc>https://www.frrs1l.org/physician-registry</loc>
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    <lastmod>2026-08-27</lastmod>
  </url>
  <url>
    <loc>https://www.frrs1l.org/frizzle-kid-bios</loc>
    <changefreq>daily</changefreq>
    <priority>0.75</priority>
    <lastmod>2026-08-27</lastmod>
  </url>
  <url>
    <loc>https://www.frrs1l.org/donor</loc>
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    <priority>0.75</priority>
    <lastmod>2026-08-27</lastmod>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/6199b89cf1d89463ad3d4203/5b885055-5513-4644-b5d6-deef00b0be85/IMG_0083.jpg</image:loc>
      <image:title>Information for Donors</image:title>
      <image:caption>A young boy lying in a hospital bed, connected to medical monitors and equipment, with a healthcare professional standing nearby in a hospital room.</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/6199b89cf1d89463ad3d4203/c4e30e2e-b8f3-4fae-9535-9dca1b4bd971/Providence+EEG.jpg</image:loc>
      <image:title>Information for Donors</image:title>
      <image:caption>Close-up of a young child with an oxygen tube on their nose, wearing a hospital cap and colorful hospital gown, lying in a hospital bed.</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/6199b89cf1d89463ad3d4203/dac747ce-ff83-4502-a888-2e7a0ca66c17/Photo+Feb+19%2C+5+22+42+PM.jpg</image:loc>
      <image:title>Information for Donors</image:title>
      <image:caption>Young boy sleeping in bed with a nasal oxygen mask attached to his face.</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/6199b89cf1d89463ad3d4203/dbb05f1f-5625-43b0-bd5b-a722d5dcc232/20240503_132452.jpg</image:loc>
      <image:title>Information for Donors</image:title>
      <image:caption>Young woman in a wheelchair, wearing a red sleeveless top and denim shorts, holding a remote control near her face with her mouth open, sitting indoors with sunlight coming through a door.</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/6199b89cf1d89463ad3d4203/1716481247454-SQQUMDNPSAL0QK05DIDF/Screenshot_20220421-040947_Facebook.jpg</image:loc>
      <image:title>Information for Donors</image:title>
      <image:caption>A young girl with dark hair wearing glasses is resting in a hospital bed. She has a breathing tube and is holding a Minnie Mouse plush toy. The background has colorful paper hearts taped to the wall.</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/6199b89cf1d89463ad3d4203/0361c142-d6fc-4728-9f4c-aeaed2cb22bc/image3.jpeg</image:loc>
      <image:title>Information for Donors</image:title>
      <image:caption>A young girl with curly hair smiling while sitting in a wheelchair in a living room.</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/6199b89cf1d89463ad3d4203/f23b152e-965b-4cfd-89b6-50a9d13193bc/IMG_4375.jpeg</image:loc>
      <image:title>Information for Donors</image:title>
      <image:caption>A young girl lying in a hospital bed with medical equipment attached, wearing a colorful hospital gown, with her eyes closed and an IV in her arm, surrounded by hospital supplies and monitors.</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/6199b89cf1d89463ad3d4203/79019216-ad8f-45ae-ae30-5c658c7f1f1f/Photo+Sep+15%2C+7+51+00+AM.jpg</image:loc>
      <image:title>Information for Donors</image:title>
      <image:caption>Young girl lying in a hospital bed with a medical IV attached, smiling and wearing a pink sleeveless shirt with colorful flower and unicorn prints, with a pink hair bow decorated with butterfly and star shapes, resting her head on a pink and blue pillow.</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/6199b89cf1d89463ad3d4203/75de602a-fe8e-479b-92e2-95a683868f22/PicsArt_08-26-05.21.39.jpg</image:loc>
      <image:title>Information for Donors</image:title>
      <image:caption>A young girl with dark curly hair sitting in a walker with a tray table. She is wearing a black and gray sensory vest and has a colorful toy on the tray. The background shows a living room with a brown sofa, a floor lamp, and a closed door. The word 'Antes' is written in white at the bottom of the image.</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/6199b89cf1d89463ad3d4203/44a1cc31-2c70-4099-b8ab-df40d9712248/IMG_6771.jpg</image:loc>
      <image:title>Information for Donors</image:title>
      <image:caption>Young man with disability sitting in a wheelchair with a head support cushion, surrounded by colorful toys and a mobility aid, in a living room with a brown couch and window blinds.</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/6199b89cf1d89463ad3d4203/0c1cb7cc-9fba-49b3-9907-5c7ba3b2956b/IMG_0085.jpg</image:loc>
      <image:title>Information for Donors</image:title>
      <image:caption>A young child lying in a hospital bed, smiling, with a bandaged head and wearing glasses, dressed in a colorful cartoon-patterned hospital gown.</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/6199b89cf1d89463ad3d4203/1716481309002-IM8DVZ5FURA2W0FGMDBR/IMG_6789.jpg</image:loc>
      <image:title>Information for Donors</image:title>
      <image:caption>Young girl in a pink and black wheelchair being examined by a medical professional. The girl has glasses and looks slightly unwell. The room has various medical and craft supplies.</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/6199b89cf1d89463ad3d4203/97bf6876-b483-47a7-a1d1-0cdc84649a01/IMG_6773.jpg</image:loc>
      <image:title>Information for Donors</image:title>
      <image:caption>A young girl in a wheelchair covered with a pink Mickey Mouse blanket, wearing a hospital gown, in a hospital room.</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/6199b89cf1d89463ad3d4203/1716481268347-0L5SNQVUT9M0SXGREGF3/25c7bb86-dc79-4013-a740-1e9c7157cc4d-1_all_1284.jpg</image:loc>
      <image:title>Information for Donors</image:title>
      <image:caption>A young boy with short dark hair in a wheelchair indoors, looking at the camera with a sad expression, wearing a colorful shirt and gray pants.</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/6199b89cf1d89463ad3d4203/125cb999-e59e-4079-90ca-d7678560e1c9/Foto+7-9-21+10+28+34+a.%C2%A0m..jpg</image:loc>
      <image:title>Information for Donors</image:title>
      <image:caption>Young boy in a wheelchair at a therapy or medical facility, wearing a gray Nike shirt and a specialized blue harness or vest for support, with a nasal oxygen tube, in a room with colorful tiles and exercise equipment in the background.</image:caption>
    </image:image>
    <image:image>
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      <image:title>Information for Donors</image:title>
      <image:caption>A young girl sitting in a wheelchair with a pink blanket behind her head, wearing a white t-shirt and light-colored pants, with her eyes half-closed and lips pursed.</image:caption>
    </image:image>
    <image:image>
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      <image:title>Information for Donors</image:title>
      <image:caption>A woman with glasses leaning over a young boy in a hospital bed, who is connected to medical devices and wearing a neck brace, with colorful cartoon patterns on the bedding.</image:caption>
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    <image:image>
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      <image:caption>A young girl with a nasal oxygen tube, lying in a hospital bed, wearing a white knit hat and cozy pajamas with a unicorn pattern.</image:caption>
    </image:image>
    <image:image>
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      <image:title>Information for Donors</image:title>
      <image:caption>A young girl with a nasal oxygen tube smiling, wearing a pink dress, white shirt, and beige sandals, sitting on a pink and white patterned blanket.</image:caption>
    </image:image>
    <image:image>
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      <image:caption>Infant in a hospital bed connected to medical devices, with a blanket covered in pink and purple circles, and a sign indicating the bed's position.</image:caption>
    </image:image>
    <image:image>
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  <url>
    <loc>https://www.frrs1l.org/clinical-trial</loc>
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    <lastmod>2026-05-22</lastmod>
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