Finding Hope for FRRS1L strives to share information and resources with the public, medical professionals, and researchers to increase the awareness and understanding of FRRS1L.
We want to get the word out about FRRS1L.
Contact us today to share the story for Finding Hope for FRRS1L!
FRRS1L in the News
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Oregonian
https://www.eastoregonian.com/news/local/saving-providence/article_3f85e40a-0c43-11ec-b8d6-57360d4674c6.html
A feature story on saving Providence
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North Forty News- Colorado
Fort Collins Family Raising $400,000 to Develop Treatment for Genetic Disorder
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Despierta America, Univision USA
Media coverage about the story of Arturo's journey with FRRS1L and the hope for a cure, along with commentary from Dr Xilma Ortiz-Gonzalez from the Children’s Hospital of Philadelphia about the founder mutation effect in children of Puerto Rican heritage.
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El Nuevo Dia, Puerto Rico
Media coverage about the story of Arturo's journey with FRRS1L and the hope for a cure, along with commentary from Dr Xilma Ortiz-Gonzalez from the Children’s Hospital of Philadelphia about the founder mutation effect in children of Puerto Rican heritage.
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WAPA TV, Puerto Rico
Media coverage about the story of Arturo's journey with FRRS1L and the hope for a cure, along with commentary from Dr Xilma Ortiz-Gonzalez from the Children’s Hospital of Philadelphia about the founder mutation effect in children of Puerto Rican heritage.
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