FRRS1L

Families, Parents, and Guardians

We invite all family members, parents, and guardians of FRRS1L children to create an account under our FRRS1L member community. Access is free. Our FRRS1L member community is focused on providing FRRS1L families with the most up to date information on research initiatives, progress updates on the development of gene replacement therapy, important data calls, family events, and other FRRS1L projects as they are developed.