Video Launch Party: RSVP

Come celebrate with us the launch of our NEW VIDEO detailing Everly’s journey with Frizzle Disease! We look forward to sharing more about our research and plan to get treatment developed for Everly and all her Frizzle friends around the world! We will be sharing information about our research work, the hope of treatment, and our plan to begin clinical trials by next year! Let us know you are coming so we can plan snacks and seating! We look forward to celebrating with you!