Finding Hope for FRRS1L Mission

  • Four stick figures connected to a central heart with lines, symbolizing connection or love.

    FIND a Community

    Create a community of Hope for FRRS1L gene disorder children and families to connect, communicate, collaborate, and support one another.

  • Black and white graphic of an atom with a heart at the center.

    HOPE for a Cure

    Serve to fund research and development of gene replacement therapy treatment for FRRS1L genetic disease.

  • A black and white outline of a human head with a heart inside instead of a brain.

    FRRS1L awareness

    Share information and resources with the public, medical professionals, and researchers to increase the awareness and understanding of FRRS1L.