Get Connected to our Frizzle Parent and Caregiver Communty by Registering your Frizzle child or children today!
REGISTER your Frizzle (FRRS1L) Child
By registering your child/children with Finding Hope for FRRS1L, it provides valuable information that will help us better understand and track the global map of the FRRS1L community; it will inform researchers conducting a natural history study of FRRS1L; and it also allows us to keep you informed through email updates and news on the progress towards developing gene replacement therapy treatment. Registering your child is completely optional.