Hope for Frizzle NYC event has a huge partner!
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Join us for Giving Hope Day, Dec. 3, 2024, a special online fundraising event planned by the father of an FRRS1L child and the opportunity he has through his employer to have all eligible donations matched. Learn more and donate at the link below.
Early giving begins Nov. 1 and goes until Dec. 31, 2024.
Giving HOPE Day
2024 was an amazing year of Hope for Frizzle children and their families, because lifesaving treatment was not only discovered but also proven in a lab to work on FRRS1L bred mice!
There is now Hope for TREATMENT!
However the good news doesn’t stop there, because 2025 will be a year focused on producing the actual treatment/drug to be used in clinical trials! To make treatment possible in 2026 we need to fundraise the remaining amount of funds to complete the treatment development process. Join us on this amazing journey to change lives and change the world, by donating today!
Happy New Year!
FUNDRAISING UPDATE
Goal 1: COMPLETED
GOAL 2: COMPLETED
GOAL 3: (Current Goal)
$1.1 million by Dec. 31, 2025. This is to fund the required US FDA Toxocology testing
Goal 4: (Spring 2025 Goal)
$3 million to manufacture the drug/treatment
Goal 5: (Fall/Winter 2025)
$2 million for Clinical Trials to treat Frizzle children