One of our mission areas as an organization is to support Frizzle families by creating a community of Hope for FRRS1L gene disorder children and families to connect, communicate, collaborate, and support one another. We host bi-monthly meetings over zoom called Frizzle Family Forums. The forums range from topics of care for Frizzle patients, expert presentations, speakers, organizational updates, and open discussion among families. To be added to our forums please first register your Frizzle child or children. If you have already registered and have not recieved a meeting invitation please email: contact@frrs1l.org