FRRS1L Videos
The following are key videos about Finding Hope for FRRS1L and the organization’s mission to support FRRS1L families, medical professionals, and the treatment development process. They also include information about FRRS1L disease, the patients that experience this devastating disease, and the treatment development process.
Viviana found herself fighting for two lives. For her son Arturo who has Frizzle (FRRS1L) a devastating genetic disease, and her own life as she was diagnosed with Breast Cancer. Watch her story of strength and determination. She is thankful there is lifesaving treatment for breast cancer, which saved her life; now she fights even harder to get lifesaving treatment funded for Frizzle to save her son. Finding Hope for FRRS1L has discovered lifesaving treatment for Frizzle, the organization has a plan to develop it, and a goal to dose patients starting in Sep. 2026, but the only roadblock standing in their way is funding.
Help fund lifesaving treatment for Frizzle by donating today!
Learn more about the devastating genetic disease Frizzle (FRRS1L) through the words of Everly’s mother. Learn of the shocking and difficult experience of regression that every Frizzle child and family experience. See how they fight each day to keep their Frizzle child alive and hope on to hope of treatment being developed by next year!
HOPE IS WITHIN REACH! Learn more about Finding Hope for FRRS1L and the organizations work to develop lifesaving and lifechanging treatment for Frizzle patients all around the world.
Gene Therapy Videos
The following are linked educational videos made by other organizations or entities on gene therapy.