Welcome Physicians and Care Professionals
We know our Frizzle (FRRS1L) diseased patients require all types of physicians and care professionals; from pediatricians, to neurologists, dietitians, therapists, and more. The list goes on and on. Frizzle (FRRS1L) diseased patients depend on their care team to help keep them as healthy as they can be, until we can get them a treatment!
From all the Frizzle (FRRS1L) diseased patients and families - Thank you physicians and care professionals!
1. Physician RegistryAs we develop treatment and begin a clinical trial for Frizzle patients, it is helpful to also connect the patient’s doctors with our team. Doctors or physicians can register here or you can select the button below to be taken to our physician registration form.
2. ResearchWe will always be updating our research page to include all the latest research on Frizzle (FRRS1L) genetic disease.
3. Frizzle Story VideoLearn more about one Frizzle (FRRS1L) disease patient and their story of the disease.
4. Treatment Finding Hope for Frizzle is developing gene replacement therapy treatment for Frizzle (FRRS1L) diseased patients. Learn more about the treatment and our goal to begin a clinical trial by September 2026.