Register your FRRS1L child
with us!

By registering your child with Finding Hope for Frizzle (FRRS1L) it provides valuable information that will help us better understand and track the global map of the FRRS1L community; it will inform researchers conducting a natural history study of FRRS1L; it connects you to our global Frizzle community; it provides you access to oru Frizzle Family Forum meetings; and it also allows us to keep you informed through email updates and news on the progress towards a FRRS1L clinical trial for gene therapy. Registering your child is completely optional.